1st Annual ALS Fundraiser – June 7, 2014 in Hayden, CO
This event is organized by Wes Dearborn and Diane Heavey.
What is ALS (aka Lou Gehrig’s disease)? ALS is a progressive neurodegenerative disease that attacks motor neurons in the brain and spinal cord. People with ALS lose the ability to stand, walk, or use their hands and arms. In the later stages of the disease, individuals have difficulty breathing as the muscles of their respiratory system weaken. On average, people with ALS die from respiratory failure within 30 months from the onset of symptoms. There are 30,000 people living with ALS in the United States and more than 350,000 worldwide. There is no effective treatment or cure. Diane Heavey’s father, Lenny, died nine years ago of ALS and she works as a CNA with local ALS patients. It has fueled her passion for finding a cure.
Proceeds this year will go to the ALS Therapy Development Institute (ALS TDI), the world’s most advanced research center focused exclusively on solving the ALS crisis. It is a 501(c)3 nonprofit organization and the only independent ALS organization that both raises its own funds and directs its own research. Because they run research studies on all facets of ALS, their findings can be applied to many other neurodegenerative disorders such as Alzheimer’s and Parkinson’s. Finding a cure for one could be a breakthrough for other fields. For more information, go to http://www.als.net/
You can help by:
1. Participating in the 30 mile fun cog ride (cost is $30)
the BBQ with live music (cost is $30)
Cost for the Combo - $50 in advance and $60 on the day of the event
Registration can be done online at this page or by calling Wes at (970) 846-2333
2. Raising funds or making an individual tax deductible contribution. Prizes will be given for the biggest fundraisers. Join individually or as a team.
3. Putting something in the silent auction. Contact Diane at 970-819-9887
4. Volunteering – contact Diane at 970-819-9887 for more detail.
Where: Wesley Park (42065 Lookout Lane) at the top of the Cog in Hayden.
Time is as follows:
11:00 Check-in begins.
12:00 Thirty mile fun ride begins.
The route starts at the top of the Cog in Hayden, comes down to Hayden, runs on Lincoln and out Poplar past the old racetrack and out Routt County Road #53, past the coal mine and back. A map can be found at: http://www.mapmyride.com/routes/view/380014403
A portable bathroom and aid station with water and snacks will be available at the turn around point.
It is an intermediate ride until the last 3 1/4 miles. The ride has 2200 feet of elevation change. Shuttle rides will be available for those that choose not to ride the final miles or want help en route to the top of the Cog.
2:30 Music – Yer State Bird is on stage
4:00 Music – Brian Smith Band is on stage
6:00 Dinner Break/Barbeque
7:00 Silent Auction ends
7:30 Music – Johnny O Band is on stage (their web site is www.johnnyoband.com)
10:00 Open campfire jam starts
10:00 Shuttle departs for Steamboat Springs (sign up required)
Camping is available on the property.
For fundraising, solicit funds from friends, family, businesses, etc. You can participate individually or as part of team. Prizes will be awarded for the largest donations.
Track your donors using the Fund Raising Form found in the links section of this page or at: http://www.als.net/docs/uploads/Fundraiser_Form.pdf. If your donors want to pay by credit card, direct them to this site and ask them to also enter your name as the rider/ fundraiser. If your donors want to pay by check or cash, collect the funds. Bring the fund raising form and funds to the ALS Cog Ride check-in area on June 7. If you can’t make the event, Contact Wes Dearborn (970-846-2333 / [email protected]) or Diane Heavey (970-819-9887) for other arrangements.
An individual tax deductible contribution can be made online through this page or by contacting Wes Dearborn (970-846-2333 / [email protected]) or Diane Heavey (970-819-9887).
Thanks for your support.
Diane and Wes